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Help Educate Senator Warren on the Realities of Profound Autism
Your voice has the power to change the conversation around profound autism. Send a hand-written letter or an email directly to Senator Elizabeth Warren.
May 23, 2025
If you have a loved one with severe autism, we see you. We know the immense challenges that come with caring for someone with profound autism — challenges many of us at Children’s Health Defense face every day in our own families.
On April 16, during his first official press conference as Secretary of Health and Human Services, Robert F. Kennedy Jr. announced that a comprehensive investigation into the autism epidemic is underway, with results expected by September. For many families, this long-awaited announcement brought hope and validation.
But instead of being met with understanding, Secretary Kennedy’s remarks about profound autism were quickly criticized by some media voices and public officials, including Senator Elizabeth Warren. These responses dismissed the harsh realities of profound autism, mischaracterizing Kennedy’s comments and minimizing the experiences of thousands of families across the country.
Senator Warren posted on X the next day.
We believe this is a critical moment to inform, educate and raise awareness. Many of you have already shared your stories online — honest, heartfelt accounts that show what profound autism truly looks like. Now, we’re asking you to take that truth a step further by sending a message directly to Senator Warren.
Take Action: Share Your Story with Senator Elizabeth Warren
Taking one simple action can make a real difference. Whether you send an email, record a short video, or send a hand-written letter, your voice has the power to change the conversation around profound autism.
This is a pivotal moment — one where your voice can bring light to what has too long been overlooked. By sharing your story, you help ensure that profound autism is no longer hidden in the shadows, but seen with compassion, honesty, and urgency. Every story shared is a step toward awareness, action, and lasting impact.
Together, we can shape a future where families are heard, supported, and never forgotten. Your voice matters. And now is the time to use it.
SEND AN EMAIL TO ELIZABETH WARREN’S OFFICE (Everyone)
If you’re not a Massachusetts resident, you can still message Senator Warren by using the contact form on her website.
SEND AN EMAIL AND, OPTIONALLY, A VIDEO (Massachusetts Residents)
Send our pre-written message (which you can edit to personalize) using the button below. After sending the email, you can choose to record and send a separate personal video message as well.
If you choose to record a quick 30-second video message, speak from the heart. Let Senator Warren see and hear what this issue means to you and your family.
SEND A HAND-WRITTEN LETTER (Everyone)
Share your experience with what profound autism truly looks like — the daily challenges, the emotional and physical toll, and the strength it takes to keep going. Include photos if you’d like. Personal stories are powerful tools for changing minds and hearts.
Here are a few tips:
- Speak from the heart; your story matters.
- Share specific moments or struggles related to profound autism.
- Express how much Secretary Kennedy’s commitment to this issue means to you.
- Keep it respectful, sincere, and clear.
Before you send your hand-written letter, please take a photo of it, or type it up and share your letter with us.
We’ll feature selected letters in Community News & Views and on CHD.TV — amplifying your story and showing the world what profound autism really looks like.
Mail your letter to:
Senator Elizabeth Warren
311 Hart Senate Office Building
Washington, DC 20510
After you send your letter or video, post a photo or message on X and tag Senator Warren: @SenWarren as well as CHD: @ChildrensHD. Use the following hashtags: #AutismAwareness, #ThisIsProfoundAutism, #RFKFightsForOurKids. Include the Unseen Severe Autism video in your post if you wish.
This is our time. Together we will help amplify the undeniable truth about profound autism and its impact on individuals, families, and our communities.
Thank you for taking action. Every action helps amplify the truth.